I started with two rounds of capecitabine/temozolamide, which did not work at all. I switched to FOLFIRINOX in May 2020, and completed 10 cycles. I had tumor shrinkage but it was a rough treatment. Oxaliplatin was removed due to neuropathy in October 2020, and I have since had 50 rounds of FOLFIRI, generally every two weeks over the last two years. Scans have been stable, so we just keep doing it. My most recent CT scan showed possible growth in a tumor in my liver, so I’ll know more in about two weeks whether we might have to switch to a new treatment in the near future.

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