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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 17 hours ago | Replies (845)

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@mkoebs

Hi Ellen,

I’m sorry to hear about your recent medical condition. I hope you’re getting the medical care you need and your outlook is good.

Here is the link to the Memorial Sloan Kettering sarcoma support group application. It meets virtually once a month and is hosted by an MSK social worker. It may take a few weeks to be approved. I find it to be a helpful outlet and haven’t found another like it at mayo or in the Twin Cities. . Having metastatic sarcoma is very scary and I have found it hard to talk to my loved ones about it openly and honestly. That’s why a support group is helpful.
https://www.mskcc.org/cancer-care/patient-education/sarcoma-group
Let me know if you need anything else. I’m always willing to listen, talk and share. Sending you much love and support.

Mona

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Replies to "Hi Ellen, I’m sorry to hear about your recent medical condition. I hope you’re getting the..."

Thank you, Mona. I have just registered.
I agree with you that sharing with family is difficult. I’m the first in the family with cancer. It’s hard to get a conversation going. They don’t know how to respond and I’m not sure if my sharing is helpful…so typically I don’t.