← Return to Lobular Breast Cancer: Let's share and support each other

Discussion
Comment receiving replies
@cindylb

@mayo101 Hello!
My screening procedure post mastectomy has been primarily physical doctor exams looking for any lumps (which is ironic because lobular tends to grow in lines, not lumps) but....my current oncologist, who I trust says any new cancer is pretty obvious post mastectomy.....a very clear bump on top of the skin. I did have an ultrasound about 4 years ago because I had a swelling near my armpit and that turned out to be a typical swelling due to a virus. I am going to ask for an MRI however at 10 years and force my insurance to cover it. I too have been with an HMO and they don't like spending any more money on me than they have to (sigh) but I will get Medicare at the end of this year and I will request an MRI just to put my mind at ease if my oncologist feels it is advised. There is really no better way to find any sneaky cancer early than an MRI. Hugs to you!

Jump to this post


Replies to "@mayo101 Hello! My screening procedure post mastectomy has been primarily physical doctor exams looking for any..."

Thanks so much for the input. It is good to be able to connect with someone who has gone through the experience of having LCIS. My surgeon seems to leave the decision of double mastectomy to me and sometimes I don’t know if my decision to go with it stems from fear or rational thinking. I know that this route is discouraged these days since there is medications, tamoxifen for example, that they say is just as effective. I am a worry wort by nature and taking a medicine that increases risk of uterine cancer will add on to my worries. Also, reading about your experience and others with lobular cancer gives me the sense that this cancer can be tricky unless it is taken care of early. Most people think I am being too aggressive going the route of double mastectomy for just LCIS. What do you think? Thanks any input you can give me.