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Anyone have experience with gastrointestinal stromal tumor (GIST)?
Sarcoma | Last Active: May 17 6:40pm | Replies (100)Comment receiving replies
Hello @shannona and welcome to Connect. I see that you recently posted about GIST tumors in your pelvis and omentum. I am sure that you are glad that your tumors appear to be shrinking.
You are asking some good questions about immunotherapy. As I looked for other members with cancer in the area of the pelvis and omentum, I see that many are members in the area of gynecological cancers. Was the cancer in your pelvis a gynecological cancer as well?
I did look for some information on GIST tumors and immunotherapy and found information on the National Institute of Health website:
--Current Status of Immunotherapy for Gastrointestinal Stomal Tumors
https://pubmed.ncbi.nlm.nih.gov/28186088/
Have you discussed the option of immunotherapy with your oncology team?
Replies to "Hello @shannona and welcome to Connect. I see that you recently posted about GIST tumors in..."
No I haven't discussed immunotherapy with my oncologist as I was told that Imatinib was my only choice of treatment. I am going along nicely at the moment and am happy with treatment. I have also had stage 3 melanoma and stage 3 breast cancer. GIST is stage 4.
I exercise with gym classes every
morning and walk. Going on my 3rd overseas trip in a year this week.
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Thank you for sharing the link, will be surely helpful for me as I'm still new to GIST and still thinking about doing surgery or not.