← Return to SCC HPV+ on right tonsil and nodes treatment plan.

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@thomason

Dear @sandralea58
My cancer was of the Pyriform Sinus, which is located around the vocal cord area. This was in 2018 and it was non-HPV. While researching my treatment options, I was informed that HPV-type cancers are more treatable with less radiation/chemo treatments than non-HPV type cancers. Has this line of thinking changed in a few short years? The treatment regimen you describe is practically the same as what mine was. Concerning that, my oncologist was adamant about receiving the chemotherapy. When pressed, he admitted to me that my chances of being cured, would improve by about 2% if chemo were included with the radiation. My husband has severe hearing loss, so when I learned that the chemo could cause hearing loss, I opted for radiation alone. If two of us suffer hearing loss, how would our household function? One of us has to hear the dog barking! Please know that I considered this long and hard. Many people would grab that 2% increase. These decisions are very difficult to get through--almost as difficult as the treatment itself! I pray the decision you both make will be the right one. Best wishes to you and yours.

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Replies to "Dear @sandralea58 My cancer was of the Pyriform Sinus, which is located around the vocal cord..."

I feel like I just found my older brother. I was diagnosed with squamous cell throat cancer April 2019. I underwent 35 doses of targeted radiation and 6 weekly doses of cisplatin. The first 2 weeks were ok. The next 10 weeks were horrible however I did walk my daughter for her wedding at that time. I also had a feeding tube.

I was ok for 1 petscan then it came back. I had a neck dissection March 2020. They could not remove it all. I started keytruda and it was good for another year. It stopped working April 2021 and they did 5 more radiations and chemo over the summer. I could not tolerate the chemo this second time and they took me off it. I had a tracheostomy august 2021. I was going downhill fast. They put me on opdivo since then and life has been good. I still have chronic throat cancer but have a monthly dosage of opdivo and have somewhat returned to "normal.". No side effects.

All at Mayo Rochester and Fort Walton Medical. Mayo Pall Care really gets a big assist too. I'm a lucky strong guy. Your hubby can make it. Accept it. Work it.

Good luck!