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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: 3 days ago | Replies (395)Comment receiving replies
Hello, your decision making process for getting a double mastectomy further reinforce my decision for this procedure as well. I have recently been diagnosed with LCIS in my right breasts and after reading much about it, I have learned that it can be multifocal and hard to detect on mammograms. My surgeon does not feel I am a candidate for MRI’s, which is more effective in detecting lobular cancers. I belong to an HMO that have guidelines for who gets MRIs. My question to you is what is the monitoring method for you after a double mastectomy since this procedure does not remove 100%of breast tissue?
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@mayo101 Hello!
My screening procedure post mastectomy has been primarily physical doctor exams looking for any lumps (which is ironic because lobular tends to grow in lines, not lumps) but....my current oncologist, who I trust says any new cancer is pretty obvious post mastectomy.....a very clear bump on top of the skin. I did have an ultrasound about 4 years ago because I had a swelling near my armpit and that turned out to be a typical swelling due to a virus. I am going to ask for an MRI however at 10 years and force my insurance to cover it. I too have been with an HMO and they don't like spending any more money on me than they have to (sigh) but I will get Medicare at the end of this year and I will request an MRI just to put my mind at ease if my oncologist feels it is advised. There is really no better way to find any sneaky cancer early than an MRI. Hugs to you!