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Abuse of Opioids takes away from all the good it can do
Chronic Pain | Last Active: May 8, 2023 | Replies (132)Comment receiving replies
Hi, I'm Blake and 29. I have a rare condition that I was born with called Syringomyelia which is basically a hole in my spine, I'm in pain most of the day every day I get back pain, neck pain and migraines. I'm on Tramadol 50mg x5 a day and it makes life bearable, it's actually the only pain med that really works on me. It's on schedule 4 so some doctors are more willing to prescribe it, I have an excellent PCP doctor that cares about his patients and doesn't think that opioids are evil.
I totally agree. Politicians shouldn't punish us chronic pain patients because of a select few that are unable to control their addiction.
Replies to "Hi, I'm Blake and 29. I have a rare condition that I was born with called..."
Omg I have a child that was finally diagnosed with syringomyelia ( ballon filled with spinal fluid in the spinal canal) at age 16 and is now 31 just wanted you to know there is an organization in Texas that is great. Not sure if you were aware of it. ASAP.org ( American Syringomyelia and Chiari Organiztion). They have year.y conferences usually held in July in different states. There is money available for some that can’t afford to attend on their own, not sure what the criteria are though. We have been to 3 or 4 over the years and learned so much. It is with that education that I learned that narcotics DO have a role in chronic pain pts. It allows people to have a life. Best of luck
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Hey there, Blake @avalon11. Welcome to Connect. You must be a strong person having dealt with a Syringomyelia since you were a child. I'm glad you've found Tramadol to help ease your pain. What other tools do you have to help you with chronic symptoms? Are you able to exercise?