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@fala

Hi John, thanks for all you valuable information for the group on a regular basis.
My SFN is Idiopathic. Also. I did not have a skin punch, so as my SFN progresses, I can only tell the extent of my progression with a sensitivity test in the Doctors office.
Therefore, I have concluded, for me, is that I should do everything I can (through tips,) to keep my circulation going the best possible. Will exercise, massage or acupuncture, slow down the progression? Of course I want the most relief from pain I can get (without drug side effects.) It would be nice to know the "why" or if it was in the genes, but does that really help? If I can SLOW DOWN the progression, isn't that primary? What is your opinion?
This group is much more helpful than my Neurologist.

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Replies to "Hi John, thanks for all you valuable information for the group on a regular basis. My..."

Hi @fala, I wished I had a good answer for you. Each of us and our symptoms are different but we have the neuropathy condition (nerve damage) in common. I do think healthier living helps and I've looked to supplements to help provide the peripheral nerves what they need if there really is going to some "healing". My early searching took me to Dr. Terry Wahls story on relieving her symptoms of MS through cellular nutrition. Here's a link to her story if you haven't read it before - https://terrywahls.com/about/about-terry-wahls/. Shortly after that I found the protocol of supplements which has helped me to slow down and possible stop the progression.

I don't have the pain as a symptom but speaking of massage therapy, you might want to check out this discussion:
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

I agree with this group being better than the Neurologist. We are on the front line living and learning from each other, while our doctors, while very important teammates, are having to learn and collect data from us while trying to figure this thing out.
I have idiopathic PN, but my neurologist says it is not SFN. However, I’m learning that so many of my symptoms are so similar to those told they have SFN. So I act is if this thing will progress unless I don’t do whatever I can do to facilitate health and strength, including vitamins, self-massage, diet, PT, and positive thinking. I tried acupuncture and was pleased with the benefits. I hope you find the combination that works for you, both physically and mentally.