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Anyone have experience with gastrointestinal stromal tumor (GIST)?

Sarcoma | Last Active: Dec 15, 2023 | Replies (51)
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@shannona

I was diagnosed 6 months ago with stage IV GIST tumors in my pelvis and omentum. I am 53, otherwise healthy and on Imatinib and the tumors appear to be shrinking. My question is, is there no immunotherapy available? It seems like for all the clinical trials, you have to have been on Imatinib or others for years and it no longer works. By that time, I would think, a person may have kidney, liver, or heart problems and years of a decreased quality of life.

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Replies to "I was diagnosed 6 months ago with stage IV GIST tumors in my pelvis and omentum...."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 29, 2022

Hello @shannona and welcome to Connect. I see that you recently posted about GIST tumors in your pelvis and omentum. I am sure that you are glad that your tumors appear to be shrinking.

You are asking some good questions about immunotherapy. As I looked for other members with cancer in the area of the pelvis and omentum, I see that many are members in the area of gynecological cancers. Was the cancer in your pelvis a gynecological cancer as well?

I did look for some information on GIST tumors and immunotherapy and found information on the National Institute of Health website:

--Current Status of Immunotherapy for Gastrointestinal Stomal Tumors
https://pubmed.ncbi.nlm.nih.gov/28186088/

Have you discussed the option of immunotherapy with your oncology team?

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