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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Hi Chris, Any suggestions to relieve the burning pain 24 hrs a day? It has been ten years now and relief would be wonderful!!! I have no balance also and use a walker. I used to show and ride my horses also but don't believe that effected this problem Need relief!!!!!!
Replies to "Hi Chris, Any suggestions to relieve the burning pain 24 hrs a day? It has been..."
Hopefully you can get to a large teaching hospital, like Mayo, or something closer to you. Pain 24/7 isn’t something a good neurologist or pain doctor will tolerate. They will work with you to ease this suffering. Please don’t accept that this level of pain is necessary! Find the right medical center for you!
I'm so sorry to hear about that. I had burning pain and numbness for 20 years due to a misdiagnosis of gout. At last a rheumatologist tested me thoroughly and said I didn't have gout and had never had it and go see a neurologist. The neurologist put me on Alpha Lipoic Acid (ALA) and in 2 weeks I started to get relief. I now take Pure Encapsulations ALA but due to input from here, I will soon be switching to R-ALA. Good thing about ALA is that near are no side effects. Hope you get some relief.
Do you have burning, tingling and like a catus is in your feet calves and buttocks?
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Good evening @madgemgunia.........you must be exhausted from fighting pain for 10 years. I received my diagnosis 10 years ago also. I started with Nortriptyline and Gabapentin. At the same time, a nurse friend introduced me to medical cannabis. I have been able to control most of the burning pain with a sequence of different options that have been developed and offered for pain, numbness, and the burning from tingle tangles.
If you choose this route, you must be your own prescriber unless there is a cannabis pharmacologist associated with the dispensary you use. I use only tinctures and topicals and only from Papa and Barkley. It might be worth your while to visit their site as they explain their products and the nature of medical cannabis very well. They have two sites
papaandbarkley.com and papaandbarkleycbd.com. I have always used products that are a combination of CBD and THC. For example, I might use a topical of 3:1 CBD/THC for chronic "burning" and numbness. I also keep a jar of 1:3 CBD/THC for any acute pain that creeps up on me.
The same strategy can be used with a liquid tincture. In fact, I don't think I have had a day in my life without medical cannabis for 10 years. It does keep the door open to pleasure and happiness as long as I anticipate and look for joy in every day.
Is this something you have access to and are willing to try?
May you be free of suffering and the causes of suffering.
Chris