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@abhinav83

I do hope you have fully recovered by now and leading a normal life. Do let me know what restrictions are you following post transplant.

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@abhinav83
Well life for a transplant patient is hard to define as normal. We are always going to medical appointments, having bloodwork done, and adjusting medicine. So this becomes the new normal as the medications often come with various side effects-tremors, hair loss, leg swelling, etc.
Having said that- many of us are able to live better than before the transplant-more energy, able to do things we couldn’t do before and enjoy life. So in that respect, I am at my new normal. And very happy for it!
I had restrictive cardiomyopathy and pulmonary hypertension. I too was very active until about a year before my transplant when I had some virus (not Covid) that really deteriorated my condition. However I kept exercising as best I could. Very important to go into the transplant as active and ‘healthy’ as you can.
After transplant I was VERY weak and could only walk a few steps. I lost a lot of weight and was very skinny. It took several months before I built up my cardio and muscles to ‘normal’.
As for restrictions-I would call them adjustments-food safety, diet, lifting until surgery heals, being around other people when immune compromised, etc.
Every transplant patient has a different story and experience afterwards. I encourage you to talk to as many as possible about their preparation and post surgery experience.
Good luck!

Hey
For how long were you on the waitlist? was there any nervousness just before taking you to the OT? Thinking about surgeries n all makes me nervous, though i am mentally prepared, but those preparations just before the surgery sometimes give me goosebumps.