Good evening @deb1972. Hello again. I think you have described the feeling that I get in my feet and lower legs. I call it "liquid ice". Unfortunately, sometimes when my MFR therapist works on my feet, she says they are not as cold on the outside as they appear to be for me on the inside.

Do you wear socks at night or use a heating blanket?
May you be free of suffering and the causes of suffering?
Chris

This is the description I always used when my burning feet were worse- like I had them in a bucket of ice water. Perfect description.

I did, and in my 1st 2 months of my sudden, crippling, idiopathic PN, it was torture. Both swings in extreme temperature feelings were awful, but the “frozen to the core” was no doubt the most painful. My nurses were befuddled that I’d always be in extra socks and gloves while trying to sleep and then find me stark naked with the sheets kicked off. This hospital then nursing/rehab home couldn’t get me an appointment with a proper Neurologist until week 4 of my 7 weeks of being admitted, and he started the Gapapentin. We started low and worked up to 800mg 3x a day, and 6 years later, I am just so grateful. Yes, I have little flare-ups, mostly of the frozen feelings, but I stay prepared with socks and gloves on hand, in my car. I am ever so thankful PT helped me learn to balance, strengthen, walk, and DRIVE again (!) so I control the heat and air I need to help my feet and hand temps as much as I can. I have to try my best to avoid extreme temperatures outside, and control what I can inside, especially water temps for showers and dishes. I’ve had to walk out of restaurants and even an ER once because of temps that even a “normal” person couldn’t comfortably tolerate. But overall, Gabapentin has just been a Godsend for managing my internal thermostat (like Chris said, your external temp feels normal to others) Gabapentin doesn’t offer the same relief for everyone, but you may want to ask your doctor about it if you haven’t already. For me, it took several weeks to kick in.