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Anyone have cancer with unknown primary?

Cancer | Last Active: Nov 9 1:19pm | Replies (163)

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@cindylb

@sheridonaldson

I have shared on this thread before about my husband's diagnosis of CUP (Cancer of Unknown Primary). My husband is thankfully on year number 7 of his cancer and just recently we've had two PET cancer scans showing no active cancer, no recurance for 7 months. It's all good news but because they were never able to identify the source or type of cancer we also don't know what to expect. It's not that common but they think what might happen is that someone has cancer that starts somewhere as a certain type and then dies but has already traveled throughout the body. That is my husband's situation. His cancer biopsies (three of them) were never conclusive to one type of cancer. They matched lung cancer and possibly upper GI cancer. But he never really had the symptoms clearly of either type. The cancer was in his lung and lymph nodes near his lungs, which later spread to his hips, spine and adrenal glands. With repeated radiation treatments of different types and a round of chemo we are here today with no obvious cancer and improved blood work but my husband is still quite tired with symptoms we can't actually pinpoint treatment for either. If you'd like to discuss anymore on CUP I'm happy to help.

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Replies to "@sheridonaldson I have shared on this thread before about my husband's diagnosis of CUP (Cancer of..."

@cindylb
Thank you so much for a new perspective! would it be possible to chat privately?