Hi, I'm male and 29 from Missouri. And I was diagnosed with Syringomyelia at the age of 14 when I was having a routine eye exam and the eye doctor detected hydrocephalus and told me to go see a neurologist, and I got my diagnoses from there. I've had 5 surgeries but my current shunt has lasted the longest. Doctors don't think that I have Chiari malformation but I have all of the symptoms of type I and I believe that I have it, I just need to find a neurosurgeon that has experience with it. I recently did a fresh round of MRIs and I was rediagnosed with Syringomyelia and scoliosis.

I have chronic pain all day every day and very rarely does it ease up for a short time, I get back pain, neck pain, migraines and a lot of times all three at the same time. I'm on Tramadol 50mg x5 a day and that allows me to function, I have tried morphine and other pain meds so far Tramadol works the best. I have an excellent PCP doctor that doesn't want his patients in pain and even my neurosurgeon sent my doctor a letter recommending that I continue with it since he considers my condition inoperable.

So it looks like theirs a few people here that have it. What pain medication are you on? What else you do to help get your mind off of pain? Hobbies?