← Return to Myasthenia gravis; Making an informed decision for my Treatment Path

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@lucylulu5280

Hello! I was recently diagnosed with Musk MG. My PCP ordered the antibody blood work and referred me to a neurologist. I saw the neurologist within two weeks. My symptoms were only ocular. I believe she would have seen me ASAP had my symptoms been more severe. So far, I haven’t had a flare for more than 6 months, and I don’t take any medication. I do follow a very strict vegan/gluten free diet. I can’t say for certain that that has helped, but I’m sticking to it for now. Stay positive, don’t be afraid to ask questions, and don’t be afraid to live your life. MG symptoms can be managed!

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Replies to "Hello! I was recently diagnosed with Musk MG. My PCP ordered the antibody blood work and..."

Hi @lucylulu5280

Thank you for sharing your experience. I’ve been experiencing leg weakness, among other things, for years. I don’t have any ocular symptoms and my neurologist suspected that I have small fiber neuropathy, but wanted to rule out myasthenia gravis. I sure glad she ordered the antibody bloodwork, but I’m just anxious waiting for the follow-up from her. She’s booked 4 months out so I’m hoping I’ll hear something before then.

Thanks again! 🙂