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Myasthenia gravis; Making an informed decision for my Treatment Path
Autoimmune Diseases | Last Active: Feb 24 6:42pm | Replies (25)Comment receiving replies
Hi there!
Just curious, how long after you had a test that was positive for myasthenia gravis did your doctor let you know? I’ve been experiencing symptoms for years and finally a new neurologist requested the antibody bloodwork. I got a notice from the lab on 10/21 that the results were ready so I looked at them and I have achr blocking antibodies, which as I understand from everything I’ve read means that I do in fact have myasthenia gravis. I realize it’s been less than a week, but I haven’t heard from my doctor’s office (I called on Monday). Just curious on the urgency that everyone else has experienced. I’d certainly like confirmation from my doctor and to get started on treatment ASAP. Thanks for your insight! 🙂
Replies to "Hi there! Just curious, how long after you had a test that was positive for myasthenia..."
Hello! I was recently diagnosed with Musk MG. My PCP ordered the antibody blood work and referred me to a neurologist. I saw the neurologist within two weeks. My symptoms were only ocular. I believe she would have seen me ASAP had my symptoms been more severe. So far, I haven’t had a flare for more than 6 months, and I don’t take any medication. I do follow a very strict vegan/gluten free diet. I can’t say for certain that that has helped, but I’m sticking to it for now. Stay positive, don’t be afraid to ask questions, and don’t be afraid to live your life. MG symptoms can be managed!
@blondie13, I add my welcome. I moved your question about myasthenia gravis to this existing discussion:
– Myasthenia gravis; Making an informed decision for my Treatment Path https://connect.mayoclinic.org/discussion/mg-trestment-path/
I did this so you can read the posts by and connect with @carrie13 @Erinmfs @asquires @ellen307 @mgmember @skhollandmt @pmdwarrior
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Hello @blondie13 I’m glad you’re sounding so upbeat! It’s the best way to tackle autoimmune diseases! You may need to call the doctor’s office and make an appointment to discuss your possible diagnosis. Your doctor may be reaching out to other doctors, also, to determine the best plan of care. They may also want to transfer your care to a rheumatologist who are becoming specialists in autoimmune disease.
I’ve posted the link to an older discussion that is all about MG. Don’t mind that it’s old, people’s experiences haven’t changed.
https://connect.mayoclinic.org/discussion/hi-everyone-let-me-begin-by-telling-you-some-of-my-story/
I’ll also ask these members to join the conversation: @pmci @lucylulu5280 @pikuptruk @ellen307 .
Will you come back and tell me what you learn?