← Return to Long haul Covid: exhaustion, confusion and enhanced ADHD

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@jazzygirl5

Thanks! I’m very curious about what people find that works. I’d love for you to send the link. I’ve had long covid for 2.5 years. Still sob, seeing pulmonologist and had to get a new pacemaker because of heart issues. Fatigue, occasional weakness and sob are my leftovers!
I’d insist on the tests you need. Keep pushing. I don’t know what insurance you have or where you’re being treated but sometimes you have to keep at it. It’s easy these days to get lost in the system and you have to advocate for yourself. I find myself doing that for myself and I worked in the medical field for 40 years. Try not to diagnose yourself too much without proper tests. Even if the tests may be inconclusive or negative, some may not and you’ll have them all in your medical records. I caught it before tests and treatments were available and it was absolutely horrible not to be diagnosed until I got really sick and even now, I don’t have a positive test but had all the symptoms including pneumonia
after 7 months. Be vigilant about getting tests, especially if going Drs. Good luck! 💕

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Replies to "Thanks! I’m very curious about what people find that works. I’d love for you to send..."

I don't have a link for Stuff that Works. Please just google it. You will have support and some good directions and suggestions for your docs. l have been bedridden since the Moderna vaccine, and now I am dealing with four autoimmune diseases, one post vax that has caused extreme leg weakness, so I'm on crutches in addition to being almost 90 years old with an artificial heart valve and weekly Hizntra nfusions I give myself. Mobility is a huge problem, so I have become a researcher of useful herbal protocols, several of which have helped. After the vaccine, my fatigue was almost overwhelming, Now manageable enough to hold my head up for hours, rather than minutes. Other positive changes, but not enough to live independently. Until I can drive again, doctor visits are for emergencies because of my life situation. However, I appreciate and value your advice, and will heed it as soon as I can. Another group you may find helpful is Facebook Covid Long Haulers. Thank you for your kind wishes. Please check out "Stuff that Works" to see how many post Covid people have confirmed EBV reactivation and how they are dealing with it. Blessings to you.