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Two weeks in, frightened by meds, PMR and COVID Booster Shot
Polymyalgia Rheumatica (PMR) | Last Active: Apr 22, 2023 | Replies (87)Comment receiving replies
I’m on my 3rd bout of PMR, the first when I was 57. I was on prednisone for 2 years at that time and had a 12-year remission. It recurred in my early 70’s and I tried to reduce prednisone in 10 months, however, it started up a few months later and currently on 2 mg and approaching 3 years. When I was on larger doses (10), I split the dose between morning and evening, now take the 2 mg dose in the evening. My PMR started several months before Covid. I have had all the Covid vaccines, flu shots, etc, without it getting worse. My first bout of PMR started the day after I did a 5-mile run/walk at a faster pace than usual. I was stiff the next day and it got progressively worse until I was diagnosed. It is a mystery disease in many ways. At this point, I am almost 76, on 2 mg of prednisone and will soon start decreasing to 1.5. Not as worried on the small dose
Replies to "I’m on my 3rd bout of PMR, the first when I was 57. I was on..."
Age 71, my PMR started when I was playing excessive Pickleball in Feb. I loved getting in shape, the laughter, the friends.
I just knew I suddenly needed two hip replacements and a shoulder, which had been hurting for a year due to osteoarthritis, rotator cuff. My hips have never hurt.
When I woke up March 15 with the other shoulder as bad as the right one, I knew it was PMR. Could not get out of bed, beached whale.
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I also had a similar situation to yours. My PMR started before vaccine, however, there is some chance that the vaccines may prolong it. I am on second taper after 3 years, down to 3 mg. If my blood tests in 2 months still show elevation in Sed Rate and CRP I will begin Methotrexate as continue tapering off Prednisone. Monitoring bones with exercise, diet and Reclast Infusions. Had my 2 vaccines and 1 booster. Not getting a second one or the new vaccine. Some doctors pushing that having only being tested on 8 mice. Who knows, but my husband is a doctor and we all follow his lead for now. Feel better.