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@johnbishop

I'm guessing the only reliable way to compare then and now and show progression or healing is with a skin punch biopsy since that's the gold standard (IMHO) for diagnosing SFN. Which means you would have to have had a skin punch biopsy to start with and another to see if it's worse or has progressed. I think you know how you feel and if your symptoms are better or worse than the doctor, so why remove another tiny section of skin to count nerve density. I think a nerve conduction test could also show things have gotten worse or better but I really don't know. Might be a great question to ask you doctor.

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Replies to "I'm guessing the only reliable way to compare then and now and show progression or healing..."

Thanks John - I sure will ask. I’ve only met my current neurologist once, but my 6 month appt is coming up. I felt positive after our intro and think he’ll be a great partner in helping me with this. Some folks on here like you and the other mentors have shown you can live very positively with this unfortunate affliction, for a long time, with managing the things we are able to control. Thanks again for all you help this group with!

Hi John, thanks for all you valuable information for the group on a regular basis.
My SFN is Idiopathic. Also. I did not have a skin punch, so as my SFN progresses, I can only tell the extent of my progression with a sensitivity test in the Doctors office.
Therefore, I have concluded, for me, is that I should do everything I can (through tips,) to keep my circulation going the best possible. Will exercise, massage or acupuncture, slow down the progression? Of course I want the most relief from pain I can get (without drug side effects.) It would be nice to know the "why" or if it was in the genes, but does that really help? If I can SLOW DOWN the progression, isn't that primary? What is your opinion?
This group is much more helpful than my Neurologist.