← Return to Two weeks in, frightened by meds, PMR and COVID Booster Shot

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@raven1955

From what I've read it does appear that some people have come down with PMR right after having covid shots. Is it the cause for some? It appears that way but I'm not informed enough on that subject to say.
I am concerned that you have dropped your prednisone dose from 25mg to 10 in just a couple weeks. That flies in the face of any recommended reduction rate. Usually a reduction of 10% or less every 3-4 weeks is more common. This isn't a race to get off prednisone, it's reducing at whatever rate that keeps the PMR inflammation and pain under control. Reduce too fast and the pain will let you know! Don't control the pain/inflammation and you'll flare up and start over at a higher dose. Pain is usually an indicator that your dose is too low. I've read that the body introduces a new batch of inflammation every night about 3-4 am. I take my prednisone in the evening which has kept the pain at bay overnight and when I get up. The down side is prednisone is great at messing up sleep patterns at night if taken in the evening but the right dose should then keep the pain controlled. If you do have PMR this is something that is going to take time, carefully controlling the dose to avoid flares and setbacks.

I believe somewhere around 20-30% of those diagnosed are able to get past PMR in around 2 years time. The average was said to be over 5 years and I have talked to some long timers who have had it around 15 years! Doctors often seem to fixate on having one off of Prednisone in 2 years time. While that'd be great it often flies in the face of reality, that a person isn't able to control the pain and get off prednisone that quickly. The cThere's lots of valuable information at this site and healthunlocked.com for PMR sufferers.

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Replies to "From what I've read it does appear that some people have come down with PMR right..."

Thank you for the info. I’m totally lost at the moment in this adventure. Your comments will help guide my questions and comments when I meet with the Internist next week. BTW, I also thought that the reduction in meds was a little quick. That said, I think that the GP that I saw was not terribly familiar with prednisone and wanted to spare me any unnecessary side effects while awaiting the consult with a specialist.

Agree with Raven 1955. Good advice.

I'm taking 5mg at 6am, 5 mg at noon and 10 mg at 6pm the last few days. A 20 in the early morning leaves me fainting with pain at 3am.
Dropping to 15 in two weeks, which I don't think is a good idea, but I added 400 mg Plaquenil 3 days ago as we had it on hand. The Facebook group has many people taking it as a steroid sparer. Familiar with it as I took it for 7 years with lupus.