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Have you tried the new Protocol 525 product for neuropathy relief?
Neuropathy | Last Active: Apr 22 7:23am | Replies (294)Comment receiving replies
@johnbishop , ditto what he said! To both of you, my docs have never mentioned any progression (or regression) expectations of my neuropathy. I’m more accustomed to “we’ll wait and see” and deal later. Obviously I want to do all I can to maintain and even improve, hence making this Mayo forum a real lifeline for me. I’m going to ask the direct question about expected progression (or not) in my next visit - that’s on me. But may I ask how it’s measured? I think for me, comparison of EMG’s may already be showing, and I need to ask if they’ve shown changes, though my last one was 2 yrs ago I think. But for folks that have SFN or negative EMG’s, how is it measured? Strength, performance tests etc?
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Deb - I am not in the medical field but I've been around enough to know that if you don't ask, you won't get all the answers to your questions. In my opinion, some doctors will not offer information that you want to know unless you ask. When I'm headed to the doctor's office, I go in with my questions written down. I make sure they see my table with my notes. This helps you stay focused. It comes down to this, if you want to know, you have to ask. I think it is wise to trust the judgement of your doctor with respect to any progression of your PN symptoms. Wish you the best at your next appt.
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I'm guessing the only reliable way to compare then and now and show progression or healing is with a skin punch biopsy since that's the gold standard (IMHO) for diagnosing SFN. Which means you would have to have had a skin punch biopsy to start with and another to see if it's worse or has progressed. I think you know how you feel and if your symptoms are better or worse than the doctor, so why remove another tiny section of skin to count nerve density. I think a nerve conduction test could also show things have gotten worse or better but I really don't know. Might be a great question to ask you doctor.