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About to start Prolia: What's your experience?

Osteoporosis & Bone Health | Last Active: Feb 27 10:57am | Replies (126)

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@lpenny

Jen, this is my first post after reading many posts on this site. I am 74 and have been fighting osteoporosis for many years. I did try Fosomax many years ago and didn’t have any problems. Now I have severe osteoarthritis and after doing much research I couldn’t decide what drug to take because of all the side effects. In February 2022 I received my first shot of Prolia and my second end of August. Within 2 weeks the joints in some of my fingers were inflamed but the worst was my thumb. I also had hair loss that was corrected by doubling up on my multi vitamins. I saw my doctor on Monday and received an injection of prednisone for inflammation. I do want to mention that as I have aged I am more sensitive to drugs. I am not going to go back on Prolia and need to start thinking of my next step for my next appointment in February. I do have an excellent rheumatologist and he is sending me for blood work and is going to research and test me further to see why this happened to me. If I had a choice I would like to not do the drugs but try a holistic approach but there’s not much I can do. Seven years ago I fell down a flight of stairs and broke 3 major bones including my hip. So here I am along with the rest of you looking for answers. My question is does anyone on this site have side effects from the medicines they are taking and why they are not mentioned ? Hope this helps, just remember everyone’s body reacts differently to medication.

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Replies to "Jen, this is my first post after reading many posts on this site. I am 74..."

Hi, @lpenny
I have just completed 23 months of Tymlos with good results but now I have to do a different drug to maintain my gains. I am really opposed to Prolia.

I discovered that I should not do Reclast because my kidney numbers are already borderline and Reclast could make them worse. I cannot do an oral bisphosphonate because I have Barrett's esophagus. So, I really have a dilemma here and am not sure which drug would be appropriate. I have an appointment with my endo on Wednesday that was quickly scheduled when I discovered that Reclast would not be appropriate.

Did you end up using a different osteoporosis drug, and if so which are you using? I really do not want to lose my gains.

It just seems as if there are no osteoporosis drugs that are not problematic.
JK