Have you tried the new Protocol 525 product for neuropathy relief?
I have used the original version of the Protocol 525 product (https://theprotocolworks.com/) since 2016. I have idiopathic small fiber peripheral neuropathy with the only symptom being numbness in both legs. When I started taking the protocol, the numbness was just below my knees. After 2 months, the numbness seems to be just above the ankles which is subjective on my part with no additional testing. I do feel it is a win-win for me as my neuropathy has not progressed like I was told it would by the neurologist. I have continued taking the protocol in hopes that it may continue to roll back the numbness symptoms. I have noticed some new feeling in my feet in the last 2 months. Some feeling has returned to me feet and they seem to feel better lately although I still have the numbness – hard to describe the difference.
The Protocol 525 is not a cure for neuropathy. It treats the pain and discomfort symptoms of neuropathy without the drugs which have their own side effects. Have you tried the Protocol 525 or the original protocol? Did it help? If yes, how? If no, please share.
Note: I have no commercial investment in the protocol and I am sharing this information as someone who has found some degree of relief using this combination of supplements. I also discussed these supplements with my Mayo primary care team before I started taking them. The care team sent them to the pharmacist for review who did not have any major concerns for me taking them.
*** Edited Oct 3, 2023 ***
For more information and a list of the ingredients, please see the frequently asked questions on the Protocol's website here - https://theprotocolworks.com/faq/.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Hello @virgormt, Welcome to Connect. Sorry to hear you were recently started having burning pain in your feet and legs from your other posts. Here is the product page for the Protocol 525 -- https://theprotocol525.com/.
I have been taking the supplements for the protocol since Sept 2016 but I only have numbness with my neuropathy. I shared my neuropathy story in another discussion along with other members here:
-- Member Neuropathy Journey Stories: What's Yours?:
https://connect.mayoclinic.org/comment/310341/
Can you share a little more about your diagnosis and any treatments you have tried?
Where do you get this 525 from? Thanks.
Hi @karina1954, You can find the link to the Protocol 525 website by scrolling to the top of the page. The link is in the discussion description that describes the protocol.
As this thread is about the protocol, they deserve proper credit for development of the program. I want to share what I have found, from their site and documentation, is in their formula. The cost of purchasing the items separately is much less expensive but you have to take many more separate pills. You can see that these are the same items by looking at the pictures on their site. They deserve credit, but I need to save money where I can. Here is the list:
GeroNova Research na R ALA, 300mg - 2 AM / 2 PM
Swanson Acetyl-L-Carnitine, 500 mg - 1 AM / 1 PM
Bluebonnet Albion Chelated Magnesium, 100 mg - 1 AM / 1 PM
Puritan's Pride Flax Oil, 1,000 mg - 1 AM / 1 PM
Swanson D3, 5,000 IU - 1 AM
Puritans Pride Methylcobalamin B12, 5,000 - 1 AM
Doctor's Best Biotin 10,000 mcg - 2 MIDDAY
Manitoba Harvest HSO, 3 TBSP - PM
NOW Supplements, MK-7 / K-2 100 mcg - 2 MIDDAY
Desert Harvest B1, B2, B3, B5 B7, B9 & B12 (blended) - 1 MIDDAY
https://www.theprotocol525.com/wp-login.php
If it is still up, there is a YouTube by the developer of the product.
Good Luck!
Mentor John - In Apil 2020, you mention in your comment above at that time, you noticed you had some feeling return to your feet. Since 2020, has that continued? Any update is appreciated. Thanks!
Hi Ed @njed, I still have numbness in my feet and just above the ankles but I do have some feeling when I wiggle my toes and do my ankle pump exercises. It seems to be somewhat better than a few years ago but it's subjective on my part. The big thing to me was that my neurologist said it's progressive and it seems to have either slowed or stopped the progression. The other condition I'm dealing with is lymphedema in the legs and I have to wear compression socks daily. I can definitely feel the squeezing on my legs and feet all day but it's more of an annoyance than anything else. Bottom line for me is that the feet do feel better than when I started in 2016.
Hope this helps!
Hi @charlieinoregon - Just thought I'd let you know that your link goes to the Protocol 525 product page login. The YouTube video is at the bottom of the Science Behind link at the top of the home page -- https://theprotocol525.com/the-science-behind/
Mentor John - Thanks for the update and great news! I was told the same, my axonal PN is progressive but, my neuro doc here in NJ also feels that in my case, the progression appears to have slowed down and she commented that in the future, it could level off. I saw the doc in mid September. I am intrigued with the Protocol 525 and I've been reading up on it. My neuro doc also wants me to take balance therapy, start tomorrow. No cure but if something might help, I'm willing to try it. By the way, appreciate all you do in helping myself and others. Million thanks!
Ed
Thanks Ed! We’re all in this life together and being able to help others also helps me.