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CRPS - anyone suffering with complex regional pain syndrome

Chronic Pain | Last Active: Dec 19, 2024 | Replies (367)
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@jeanniem

I did take some time to look over the problem. I don't know that I would qualify, at least not at this time. I remain pretty active. I go swing dancing when I can (sometimes I pay if I overdo things) and am in the process of upgrading to an e-bike so I can continue to ride - even on bad days.

I appreciate you reaching out. Things are going well, all things considered. I am doing some aqua therapy and we are in the process of increasing my Baclofen. We might be adding in pelvic floor physical therapy and I am supposed to be getting in to a spine doctor at some point. Those lovely moving pieces! I got a new ankle brace yesterday and am hoping that helps with ankle and knee pain. I volunteer at the dance this Friday and I am hoping to get out on the floor! 🙂

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Replies to "I did take some time to look over the problem. I don't know that I would..."
Sue, Volunteer Mentor | @sueinmn | Oct 25, 2022

You said, "I got a new ankle brace yesterday and am hoping that helps with ankle and knee pain. I volunteer at the dance this Friday and I am hoping to get out on the floor!" I understand.

I have two words for you Kinesio Tape. We are older dancers, and it is what allows us to keep on. My knees, my wrists, my partners' knees & damaged Achilles tendon. I have even been known to tape a shoulder or elbow when arthritis flares!
You can find info on the Web, or probably from fellow dancers.
Sue

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Rachel, Volunteer Mentor | @rwinney | Oct 26, 2022

Good for you Jeannie! I'm glad to hear things are going well. I like your resilience and problem solving skills. Strategizing to find solutions so you can continue to ride a bike, even on bad days, is key to success. Kudos! My mantra has always been, "where there's a Winney, there's a way." I bet you have mantras too.

Moral of the story... keep moving and don't let our conditions be joy robbers. Know when we need to moderate and modify or have a difficult day plan, otherwise "hurt does NOT equal harm" when dealing with chronic versus acute conditions like chronic regional pain syndrome.

Find your joy today! Good luck with the e-bike and possible pelvic floor PT. I'll look forward to updates. 😊

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