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Increasingly Difficult to Accept Peripheral Neuropathy
Neuropathy | Last Active: Aug 27, 2023 | Replies (163)Comment receiving replies
Thanks for the reply. I'm doing a virtual visit with my neurologist this Friday and was planning to discuss Tegretrol with her. For whatever reason, it has a reputation of helping more genetic neuropathies than other types, so I'm hoping that she will write me an Rx. Just out of curiosity, why did you stop taking the Tegretol in 2014? Side effects?
Replies to "Thanks for the reply. I'm doing a virtual visit with my neurologist this Friday and was..."
Read about voltage gated sodium channels (VGSC), if you like doing research.
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In 2014, I was 54, and had been taking Tegretol for complex partial seizures that started around age 21. At this point, I hadn’t had a seizure in many years. My neurologist had retired, and my GP was writing the Rx. I was just curious about whether I still needed it. As a nurse, I knew how to safely wean off of it. I’ve never had another seizure.
I like digging through research articles, and that’s how I put together the puzzle pieces on Tegretol. This inspires me to search again for the article that mentioned it. Again, I’m really amazed at the effect on most of my SFN pain, palpitations, sweating. Life is far from perfect - I can tell that my neuropathy is continuing to progress. But that burning pain in my toes and fingers, that had me is such despair, is gone. My skin is still overtly sensitive to minor bumps and pressure, but nothing like it was before.
Good luck!