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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: Feb 27 11:42am | Replies (59)

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@hopeful33250

Hello @queensmom and welcome to Mayo Connect. I'm sorry to hear that you are dealing with neuroendocrine carcinoid cancer (NET). You asked about my treatment, as there was no lymph node involvement and no current evidence of metastasis, I only had surgery but no other treatment.

As NETs is a rare disorder, I highly recommend that you see a NET specialist for treatment. You can find a list of specialists if you go to the Carcinoid Cancer Foundation website. Here is the website for that organization:
--Carcinoid Cancer Foundation
https://www.carcinoid.org/for-patients/

How are you feeling since your surgery? What has your doctor suggested as a follow up?

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Thank you so much !