Hi!

Thank you so much for reaching out, and for the links.

I am seeing a neurologist, one that I have been seeing for over a decade for migraines. He is not a long Covid expert, but has plenty of patients who are now afflicted with it.

He did encourage me to join a long Covid study at his affiliated hospital, but I am terrified reinfection. I do not want to go into medical settings where there is a chance of exposure. Especially now that nobody takes masking seriously. Even medical professionals.

I was discouraged by a family member from joining a study, he didn’t want me to think of myself as “sick.” I recently touched base with my GP for a third time to discuss my LC, and she hurried up the telehealth appointment by asking me, “Well, what do you want me to do about it?”

I feel pretty discouraged.

I know that my symptoms are not as severe as other long haulers. I don’t want to take somebody else’s study slot, somebody who is more deserving.

What I find most disturbing is impaired cognitive function. I have lost past pre-infection memories, I lose time, my brain doesn’t “record.” I struggle to pronounce words, to find words. I get lost in my own neighborhood. My sense of direction and grasp of geography is… all wrong. I cannot “unglue” certain words or concepts that have become jumbled in my brain.

I am concerned by my vertigo and dizziness. It comes and goes, but it’s sometimes so severe that I find myself on the floor with no memory of the fall. My left hand tremor comes and goes. Like the inner vibrations, it is not a constant symptom.

Anyhow, I’m glad I found this community. Maybe I will start to feel a little less alone.

Thank you 🙂