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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@rybren

Hello, interested in experiences of others. I was diagnosed with Peripheral Neuropathy a few weeks after my 2nd Covid vaccine symptoms appeared. Went to Podiatrist as I thought I had some foot issue and never had any neurological issues. The dots were not connected in May 2021, since I went on to get two boosters. 4 jabs in total for Covid.

My diagnosis was confirmed with a neurologist with many labs test (all normal) and the EMG test confirming neuropathy. I am taking many vitamins and use Nerve Regenerator (Electrical Treatment). I have been following a protocol for 6 months and I am afraid it has not improved. No alcohol, no drugs, just painful feet that comes and goes.

Have others experienced a similar condition? Treatments that work? Vaccines in the future? Would appreciate any info others have on this messy situation. Thanks Mike

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Replies to "Hello, interested in experiences of others. I was diagnosed with Peripheral Neuropathy a few weeks after..."

Hello @rybren and welcome to Mayo Clinic Connect. You will notice that I have moved your post into an existing discussion on this topic which you can find here:
- COVID vaccines and neuropathy: https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

I did this so that you may connect with other members more easily. Did you ever test for COVID? Were you ever positive?

Hello Mike @rybren, I would like to add my welcome to Connect along with @amandajro and others. I'm sorry to hear your neuropathy symptoms started with the COVID vaccine. I've had neuropathy for 20+ years and was fortunate that they were not worsened even though I've had the Pfizer vaccine and boosters. I also had a mild case of COVID after my first COVID booster.

It sounds like you have done a lot of research to find something that helps with the neuropathy. There are a couple of sites that I've found helpful in learning more about my condition:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

Do you have any other medical conditions or take any medications that could be a possible association with neuropathy?

Mike,

I'm so sorry you, too, are dealing with this. They NEVER tell the world about those of us who are vaccine injured, and Lord help us if we post anything about this on social media ... accounts are locked down and not usable for a period of time they deem appropriate because we are "spreading misinformation". Yeah, right. Live MY life for just 24 hours and you'll understand why I want to warn others.

I am NOT ANTI-VACCINE. I am ANTI-LIES and EXPERIMENTAL MEDICINE.

I had a normal life until I took the first two Moderna COVID jabs. Now I cannot drive, cannot grocery shop, cannot walk without assistance (have gone from a walker to a cane), cannot even get in/out of the tub. NO BOOSTER FOR ME. PERIOD. EVER.

The peripheral neuropathy pain is so bad, I'm having to use Rx CBD/THC gummies just for relief (no, it does not make me high). I was previously taking Gabapentin as prescribed by my doctor, but that made me have horrible brain fog/memory issues and feel horrible with little to no relief from the nerve pain.

I do not know why I am having to walk this path. I guess this is what "walk by faith and not by sight" means. I know God loves me and has a plan for my life ... I just never imagined my life as one of disability.