← Return to CRPS - anyone suffering with complex regional pain syndrome

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@rwinney

Hey there @jeanniem, I wanted to check back in with you to see how things are going. You remain on my mind since your last post. I related to your comment,

"I come from a go-getter family where the expectation is that you always go above and beyond. Finding balance without feeling lazy is one of my larger growth edges."

Boy, that resonated with me but more of those being my personal expectations. Not so much the lazy part, moreso never sit still, always accomplish something, the job is never done, put every one before myself. It all can take a toll physically, emotionally, and behaviorally and exacerbate symptoms.

I was recently rewatching patient testimonials from the Mayo Clinic's Pain Rehabilitation Center and wanted to share them with you:

Mayo Clinic Patients Discuss PRC:
- https://newsnetwork.mayoclinic.org/discussion/patients-tell-how-pain-rehabilitation-program-brought-them-relief/

There certainly are "lots of moving pieces". I hope that you consider choices. With chronic pain and symptoms we may not always be able to control what comes our way, but we can control the way we respond and the choices we make to help achieve a better life quality for ourselves. I myself had to dig deep to figure this out. It's taken a long journey to get there, but I've gotten there. The job of rehabilitation is never done. My wish is to inspire you and let you know you're not alone.

Wishing you a happy hopeful day! Keep on, keeping on, my friend.

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Replies to "Hey there @jeanniem, I wanted to check back in with you to see how things are..."

I did take some time to look over the problem. I don't know that I would qualify, at least not at this time. I remain pretty active. I go swing dancing when I can (sometimes I pay if I overdo things) and am in the process of upgrading to an e-bike so I can continue to ride - even on bad days.

I appreciate you reaching out. Things are going well, all things considered. I am doing some aqua therapy and we are in the process of increasing my Baclofen. We might be adding in pelvic floor physical therapy and I am supposed to be getting in to a spine doctor at some point. Those lovely moving pieces! I got a new ankle brace yesterday and am hoping that helps with ankle and knee pain. I volunteer at the dance this Friday and I am hoping to get out on the floor! 🙂