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@john316ga

My husband of 51 years has Lewy Body Dementia. He’s 78 now, but the disease started out several years ago with what we thought were very vivid dreams. Not dreams, but full blown hallucinations. Taking care of his needs is the biggest challenge of my life. I will continue to love and care for him throughout his life or mine. As hard as it is for me, it’s an absolute hell for him. If it were reversed, I know he would do the same for me.

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Replies to "My husband of 51 years has Lewy Body Dementia. He’s 78 now, but the disease started..."

Hi, @john316ga I'm sorry to read of your husband's health journey. I'm Scott and I was my wife's caregiver during her journey with brain cancer, which gave her many dementia-like symptoms as well as for my MIL who had Frontotemporal Dementia.

I agree with you that caregiving is a tough job and your additional comment rang equally true to me in that I always felt I had the easy part of the deal since my wife was fighting for her life every day and I only had to be her caregiver.

I hope the sun is shining wherever you are today!

Strength, Courage, & Peace

My husband is being tested for Lewy Body Dementia with a DAT test and skin biopsy due to REM sleep disturbance. He has already been diagnosed with Dis-executive Alzheimer’s. This journey is a challenging one to be sure!