Scared

Water is life. 64 ounces is very doable! I still drink coffee… more than I should ( heart issues) and my husband, who had mild ckd and bladder cancer removed last month drinks a little decaf and 80 oz water. So so important for anyone, especially health- challenged. I have a 32 oz bottle that I fill up twice a day to monitor my water. It helps to get a jump start in the morning.

@collegeprof, AA commercial sounds ok to me. Your post is spot on.

I wish I knew something about this but I don’t…..take notes. When my sister was ill both my niece and I would go with her and share notes after the appointment. We all had something to add that the others didn’t remember.

@ldrlaw Our mind is busy taking in what our team is saying, and processing it. We miss the next few sentences, or more. While we formulate a response, the team keeps on going, and we have only heard some words. Then they ask if we have questions, but we were not fully present for all of their words. Sound familiar? I have been known to tape record the visit, with their permission beforehand.

Glad to hear you had two sets of ears besides your sister, to compile all the information!
Ginger

One of my sister's doctors at Froedtert Hospital in WI refused to let us tape the conversation - even tho the cancer websites all recommend it. That was the day I would have fired him but she didn't want to.

..sorry ... do not know anything about this but if the Doctor did not want to be recorded has to make a patient review note for the file, I think you can ask for and receive a copy? Might be of help... ?

I had an activated power of attorney for health care (I am a retired attorney). I did review records but it also took me four tries to get her full record....at least I think it was her complete record - who knows? There were a couple of incidents that I knew should be included but they weren't present until the last request. I was used to accessing/reading records but working with this hospital/her doctors was a nightmare. I know they do a lot of good and it's known as one of the better facilities but working with this hospital, at that time, was horrible. I feel strongly that when you're in the hospital, you need an advocate and if they can be with you 24/7, all the better. I'm allergic to Dilaudid and all of my records are flagged for this as it suppresses my breathing. When I came out of back surgery in AZ (not Mayo) I told my daughter-in-law that they had given me Dilaudid. I asked to see my records. They said that they don't let people in the hospital view their records....what better time can there be? I asked to see the Administrator and they gave me the records...they had given me Dilaudid. Be assertive - you're not going to see these people again (or at least hopefully not? 🙂 )

..just to say many years ago patients, at least me and my family, never saw any records from family dr to specialist to hospital... now at either LAB where i have blood tested, urine samples etc., it is posted on line for me to see once it has been sent to dr., and now I phone hospital after being in emerge and get a complete copy of what is on my file; last 2 times I did notice some errors and phoned someone at hospital about it but decided not to pursue; if the accuracy was imperative re a worker's claim, or insurance claim I would have asked for info to be corrected, but it's just misquoting mainly. ... I also had dna done re meds six years ago but havent met a dr yet interested in it.. or has time to read it and when I have given info recorded in it re meds I should not take, they prescribed anyway!.... if you with your knowledge etc. are having problems, imagine what the rest of us without that knowledge are making out; other than pinning a note to our hospital gown when we go into surgery, not sure how would ensure info is seen - and am not tarring all drs with same brush... but esp. since covid and pressure on medical teams, they arent going to have our patient file to refer to as they perform surgery etc.... not sure what the answer is, but at least can get records even after the fact, which is a step forward.... J. PS. not many people wear those chain link bracelets with allergy meds on etc these days do they?