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Unexplained severe fatigue without tapering .

Polymyalgia Rheumatica (PMR) | Last Active: Oct 23, 2022 | Replies (17)
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@marymv

Hello Dianne,
Weaning below 10mg has been the challenge for me. We started reducing 1mg a month in January so 10mnths ago. I got to 6mg in July pain & stiffness worsened. I tried to tough it out for 2 months as I am dying to get off the Pred but my Dr. says we have to get the inflammation down as my symptoms worsened & CRP is up again...so back up to 7.5. After 1wk I was much better. Gonna try 1/2 mg a month decrease now.
Best,
Mary

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Replies to "Hello Dianne, Weaning below 10mg has been the challenge for me. We started reducing 1mg a..."
ddmo | @ddmo | Oct 23, 2022

saw my rheumy last week. he said there is NO TIMELINE .. very good advice for me, as i was down to 1mg and horrible pain (thighs, neck back of waist) back up to 5 and feel so much better.. hate the pred but got to go with the flow. Doc said taper down every 2 weeks.. 5,4,3,2, and then my next appt. Good luck to you. I feel your pain lol
Dianne

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