← Return to Breast cancer spread to lymph nodes. Would you choose chemo?

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@lisakinpa

Hello fellow “Lobster “ which is those of us who have/had lobular breast cancer.

I was triple positive so I had to have chemo. It’s usually recommended to have chemo if you find that the nodes are positive.

On the other hand, some research questions the success using chemo for those with lobular cancer as this type of cancer can be quite stubborn.

I had great success with both chemo and radiation minimal side effects.

I think it might be a good idea to get another opinion, just to reassure yourself that you’re in the right ballpark.

I know you’re probably feeling a tremendous amount of shock right now and it can be so incredibly overwhelming these first few weeks when major life decisions will need to be made.

You can do more research using the Mayo Clinic or American Cancer Society’s online website. Both provide good solid information that’s easy to digest. Also breast cancer.org is a wonderful tool as well.

Please keep in mind that although we all now belong to a club we never really wanted to join, each of our experiences are uniquely our own. You may not necessarily experience what someone else may.

And lastly, listen carefully, take someone to appointments with you to take notes, perhaps get a second opinion and above all, listen to your gut feeling and what feels right for you and have faith. ♥️🙏♥️

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Replies to "Hello fellow “Lobster “ which is those of us who have/had lobular breast cancer. I was..."

@lisakinpa can you cite your statement that chemo is usually recommended if you have a positive node or nodes? For 1-3 the Oncotype is usually the guide on this decision. I know people with a positive node who did not have chemo. I am genuinely curious and not challenging you! I had LVI so it is relevant to me too since LVI is said (in one place online anyway) to be similar to one node positive.

@lisakinpa thank you for your response, information, and words of encouragement! All of this is so overwhelming for sure. I'm happy to hear you had minimal side effects. Reading about yours and others journeys has been helpful. ❤️🙏