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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 27, 2023 | Replies (163)

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@fisbo

Decided to reply as you saismd so much and I am truly sorry you are divorced. How did it get that you had to go to the hospital a lot and all? If you don't mind my asking that is. 15 years is a long time and I guess you are not that old. I am 65 and was a youthful one but not the case now. Relentless pain and pins and needles in my feet and lower legs prevents me from leading a normal life. Writing this is a distraction which is good

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Replies to "Decided to reply as you saismd so much and I am truly sorry you are divorced...."

Because of my autonomic neuropathy I would have autonomic storms ( there are numerous names for this like autonomic dysnomia). It’s worse then dying. It’s like dying but not finishing the dying process.
I also am 65 and it started with Atrial Fib and severe pain in my feel. It felt like the bones in my feel were coming through my skin. All this progressed to where I am today. Hospice has been a great help. Pretty depressing that I’m declining pretty fast. But now when I go to the hospital they tell me there is nothing they can do for me. My last visit was my blood pressure was 60/44 and my oxygen level was 83. I’m now on oxygen 100% of the time now.

I meant feet not feel. Sorry.