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Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)
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@newbienet

Hi @ce1b thank you for sharing with me. Did you get referred to that NET specialists through the VA? Right now, all I have a gastroentologist. His name is richard strong through the va. I don't see oncology until this friday coming up. And that will be my first oncology appointment. Just wondering if i should ask for a referral to see someone else...

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Replies to "Hi @ce1b thank you for sharing with me. Did you get referred to that NET specialists..."
ce1b | @ce1b | Oct 22, 2022

NuB
The VA sent me to a cancer clinic close to my home. I did not get to see a NET Dr. And from what I was finding the treatments didn't line up. My cancer is in my lung, and it has spread to my lymph node.
Smart money would print the questions you should ask from the Net Cancer website. Take that with you when you see the oncologist.
Your testing should include PET scan.. , brain scan, and biopsys on anything that lights up.
I also believe the VA has one of the hospitals doing NET studies. I'll try to find that link and forward it to you.
My second opinion is coming from a NET specialist at the Mayo Clinic.. Thankfully he is in my local area. I'll be seeing him on the 15th I think..

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