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Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: 14 hours ago | Replies (411)

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@ce1b

Hi, I'm a vet too being treated through the VA. What I have found is that the VA is limited as to their skills and knowledge when it comes to the treatment of NETs.
You are getting good advice from the mentors at this site. Knowledge is your best tool as you progress through your illness.
I have found a NETs specialist here in Phoenix, AZ that is involved in clinical trials. I now have an appointment with him for a second opinion on my treatment plan... My advice is to make sure you are speaking to a doctor that is “NETs” qualified when seek or decide on your treatment plan.
Good luck in your journey. Lower your stress, meditate a couple times a day, stay as physically fit as possible, and prepare yourself for the upcoming proposed treatments. Your body will thank you.

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Replies to "Hi, I'm a vet too being treated through the VA. What I have found is that..."

Hi @ce1b thank you for sharing with me. Did you get referred to that NET specialists through the VA? Right now, all I have a gastroentologist. His name is richard strong through the va. I don't see oncology until this friday coming up. And that will be my first oncology appointment. Just wondering if i should ask for a referral to see someone else...

Hi @ce1b. thank you for sharing with me. I don't know why my messages are posting here

@ce1b do you also have carcinoid syndrome?