Hello @pmom, my name is Chris and I certainly understand your point. The fact that there is no cure at this time is gut-wrenching at first. I was diagnosed with SFN (small fiber neuropathy) in 2013. I became quite interested in end-of-life options for some time. I couldn't imagine myself needing a wheelchair or restricting my activities, or being excluded from participation because my pain was just too much.

And when we know that neuropathy is the result of very slow nerve regeneration, it does seem reasonable to expect our world of technology to jump in and help.

So....what I have learned is that it is time to buckle down and learn how to cope.
1. Accept the diagnosis.....use mindfulness and meditation to help you.
2. Become educated about the condition and the available and legitimate coping options.
3. Find pleasurable alternatives to activities that are no longer available to you.
4. Get positive support for your abilities by volunteering in some fashion, somewhere.
The rewards for helping others seem to take our minds off our own displeasures.

Doctors specializing in neuropathy have chosen a difficult path. There are no miracle surgeries waiting to be discovered. And so far, there are no treatments or medical concoctions that have the ability to create nerve cells. And still, they have chosen to help us all.

Do you have a confirmed diagnosis for your neurological condition that you can share? What three medications did you try? Perhaps there is something that Connect members may be able to contribute that has the potential to be helpful.

What is your most challenging symptom?

May you be free of suffering and the causes of suffering.
Chris

Is true.No cure.To make your days easy just accept it.Do things you like to do.And keep your mind busy.I hope one day a doctor will find a cure.