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Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 27, 2023 | Replies (163)

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@frattmaa

I hear ya. It miserable and seems to define us because I’m always turning down my friends who invite me over for dinner or go to the lake or watch a movie. I got tired of always breaking the commitments I made. So I just say no. Some I am defined by this disease. I’m sorry you are struggling. But we all are and it never gets better and never goes away. With that said there are many medications that can help. But see a neurologist, not any neurologist, find one who specializes in neuropathy. If not they will be of little help.

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Replies to "I hear ya. It miserable and seems to define us because I’m always turning down my..."

You don't get any choice with neurologists under NHS so getting one who specialises in peripheral neuropathy would be lucky. Presumably you suffer with it. I find myself sleeping away a lot of the time. I go swimming but that has gone down hill nowhere near as I used to be. I have been like this for 2.5 years now and not getting used to it. I cannot accept it and I am incredibly depressed about it. Everything about me has changed and I am nowhere near looking as I used to look and be as a person. It's taken so much away from me and left me afraid and nervous.