I have been completely transparent with my doctors from reports, images, pictures and videos to explain all my symptoms. I have more findings and I have been asking for biopsies or gold standard testing for particular things and had been dismissed. I’m extremely exhausted and sick. My symptoms started 11 months ago and now are worse; abdominal pain, bone pain (new spots in bone scan dismissed), shortness of breath, stiffness, heart rate with pain (new thickening of the mitral valve prolapse), light color period, low iron, new cyst on my spine neura foramina (PET scan uptake there), blood spots on skin, bladder retention, chronic inflammatory changes on bladder biopsy on a hypervascular spot, edema lymphic aggreggates on colon biopsy, new cysts on both ovaries (in lil time difference), involuntary movements, headaches, nausea, vomiting, weakness, feel I’m going to pass out, pale, yellow and gray lips. I just want to able to breath, eat, use restroom and walk normally. ❤️‍🩹🦓