Hello all, My heart goes out to each of you! I truly understand, I received a COVID vaccine but it was a different manufacturer. One and a half years ago I developed CIDP post-vaccine. I am also a healthcare provider and I had to retire due to my illness. It has been a very challenging time and I have learned to manage one day at a time. I look back and see that I am improving but it is a very slow process and I probably will never be as I was prior to vaccination. Every other week I receive IgG infusions and that does help for several days! I find that a low sugar and low carb diet helps relieve the symptoms of neuropathy and exercise keeps my muscles strong.. I am sure you all understand that many days you may not feel like exercising but it truly assists in relief of symptoms. One thing that I have found is relaxation and decreasing stress also improves my life. As a retired anesthesia provider I have been doing research on care and treatment of neuropathy and it varies greatly. I have determined that patients need to do what works for them and one treatment protocol does not work for everyone. It is important that you communicate your progress and concerns to your provider, they are also learning how these vaccines can cause illness to us and how to treat acutely and long term. I think it is important for each of us to stay connected to others that have similar experiences, it helps to know we are not alone.
Kim