Connect
← Return to Hi, stage 4 colorectal cancer here
Discussion
Hi, stage 4 colorectal cancer here
Colorectal Cancer | Last Active: Aug 3, 2023 | Replies (101)Comment receiving replies
Hi,
My mom was diagnosed with metastatic colon cancer in december 2021. Her oncologist told us the cancer had spread to her abdominal lining , 2 lymph nodes and has about 5 to 6 lesions on her liver. The doctor decided to start her treatment with oxaliplatin and capecitabine a regimen of 14 days with 7 days off. After 8 rounds of oxaliplatin they had to stop due to really bad side effects of neuropathy, now she is on avastin and chemo pills. Recently we spoke to the doctor about my mom not being able to eat due to the change of taste in her mouth and the doctor decided to lower the dose of capecitabine. My mom has told the doctor about having pain in her lower back but dr says its unrelated. I feel like the doctor is not even trying to help my mom. Only thing dr has told us is that my mom is stable . Does anyone know of a good oncologist or a dr who can help us?
Replies to "Hi, My mom was diagnosed with metastatic colon cancer in december 2021. Her oncologist told us..."
@lunaluna10, I'm sorry to hear that the chemotherapy side effects are challenging for your mom and affecting her quality of life. My dad also had trouble with worsening neuropathy and changes in taste. He didn't have pain thankfully. My dad also chose to take a chemo holiday sometimes. In addition to @bea1972's helpful reply about Avastin, @margreet @wifemom3 @lisag03 @fiona007 may have additional tips or experiences to share.
If you would like to seek the second opinion of a Mayo Clinic expert, you can submit a request on behalf of your mom here: http://mayocl.in/1mtmR63
How is you mom doing today?
Connect
Hi,
Avastin worked well for me. As far as the tase in the mouth (metal icky taste I'm assuming), try sugar free throat lozenges with menthol - that works for me. I'm super physically active and 50, so do not know your moms activity tolerance. But, staying in motion helps with side effects, back pain, depression, and energy. Walks work wonders! I wish your family the best!