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DiscussionChronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)
Autoimmune Diseases | Last Active: Feb 5 3:57pm | Replies (97)Comment receiving replies
Replies to "I have not been given an official diagnosis of EN, after multiple labs including chest X-ray,..."
@mmcsackett4 I guess I don’t understand. You still have painful nodules but the doctor says ‘no more tests needed’? Did they find anything with the tests that were done?
Would you consider finding a major medical center or university teaching hospital? Doctors there seem to be more educated than those at community hospitals. That was my exact experience. I was getting very sick and got an MRI. The MRI showed many lesions on my brain that were causing demyelination. NONE of the doctors locally knew what they were seeing! My husband had them contact the university hospital near us for help. To this day, i still go to the university hospital for care.
Don’t try to treat yourself, find a knowledgeable doctor.
Can you find a large hospital near you?