← Return to Chronic Fatigue while tapering Prednisone for PMR

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@bcarr54

@macadoo
I developed PMR in February 2021, starting at 40 mg of prednisone and tapering to 15 within the first month. To date I am at 1 mg for another month and then hopefully off prednisone. I developed extreme fatigue after catching Covid July 1, 2022 (vaxed + fully boosted) and have questioned my internist and rheumatologist about it, Without any clear understanding. Did I develop long Covid, or is the extreme fatigue caused by the prednisone reduction. I Also have to nap 1 to 3 hours mid day. I just turned 68 and have never napped in my life! My Rheumy is also starting me on Methodextrate once I’m off Pednisone, for RA In my hands, (RA, which I tested negative for). I have always been active; hiking biking swimming, traveling, until PMR took over my life. I feel 10 years older and hope I see some improvement in the future. It’s very frustrating to constantly make excuses for why you can’t participate in things. Best of luck to you all.

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Replies to "@macadoo I developed PMR in February 2021, starting at 40 mg of prednisone and tapering to..."

I had severe fatigue before diagnosis with Giant Cell Arteritis, caused by the disease and called anemia of chronic inflammation. It went away when I started prednisone 40 mg. I just got off it. I was down to 1 mg prednisone, then my Rheumy told me to take .5 mg every other day until I finished the pills. Most of the people I know who have caught COVID complain of severe fatigue so I wouldn't be surprised if that's what's causing your fatigue. Prednisone gave me lots of energy. Now that I'm off it, I'm back to normal levels. PMR and GCA are self-limiting diseases and eventually go away, but they leave a lasting impression. I will never forget the pain and limitations I experienced with them, and I'm careful not to overdo it anymore as I don't want a flare up. Wishing you the best.