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Non-Length Dependent Small Fiber Neuropathy

Neuropathy | Last Active: Nov 27 9:39am | Replies (135)

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@jemock

Howdy, I started into it 12 years ago. It’s blossomed into the full-blown deal now. Affects me all over the body, has ruined my teeth, ringing ears, burning eyes, gastroparesis, blood pressure, crazy pain 24/7. I tried and done everything, I do believe, but to no avail. Tough stuff.

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Replies to "Howdy, I started into it 12 years ago. It’s blossomed into the full-blown deal now. Affects..."

The same here, with the teeth, ringing ears, watery burning eyes, blood pressure. Pulse rate. I ended up getting a pacemaker because the autonomic neuropathy is killing the nerves in the top part of my heart. I’m on hospice for the autonomic neuropathy and have been told there no longer is anything they can do but make me comfortable until I die. I’m sorta depressed but then again I’m happy I won’t have to suffer any longer. This horse rap disease is the gift that keeps on giving. If it’s not one thing, it’s another. Constant unrelenting pain. Like out of your mind pain. So I actually welcome death. I just cannot take this torture for another 15 years. And it is just like torture.
Funny how none of the actors or sports figures are advocates helping with neuropathy and with research. Wait until they get it or the President get it then there will be funding to help us all out. Just my opinion.
I hope all my small fiber sensory neuropathy and autonomic neuropathy friends get a decent sleep. That way tomorrows battle may not be as bad.

Have you tried Kratom. It’s a powder from the leaves of the Kratom tree. It attaches to the opiate sites in your brain faking out your brain that you are on narcotics. It’s non addicting, you don’t feel weird or buzzed, just no pain. I also use gummy THC and that helps with pain. Norco, Morphine, Valium, clonazepam Tramadol, Fentanyl, and the biggie methadone all help. Have you tried any of these?
I wish you the best.

How do you mean SFN has ruined your teeth? I have dental symptoms sometimes but hadn't connected them to SFN. What should I prepare myself for?