Hello @luckycharms4me, Welcome to Connect. I know it can be scary and worrisome when you have a condition like neuropathy and there are not a lot of answers out there. You are not alone and learning as much as you can about your condition is the best way you can become a better advocate for your own health.

I can relate somewhat to your symptoms as I only have the numbness and a little tingling with my small fiber peripheral neuropathy but no pain. You might want to read through the following discussions to learn what others have shared:

-- Neuropathy: Numbness only, no pain:
https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/
-- Paresthesia, abnormal sensations:
https://connect.mayoclinic.org/discussion/paresthesiaabnormal-sensation/
You mentioned your neurologist retired and you feel like you have to start all over. Have you thought about seeking help at a teaching hospital or major health facility?