I hear you, I’m 53 years old and can’t imagine living with this rest of my life. But some days are good and some bad. I live in NYC and all of the neurologists I have seen (five!) administer the skin biopsy test.
I have been trying too figure out if there is any pattern to what sets off the pain and where I get the pain. On my third year of this, I have yet to find a pattern. I do notice that pain lessens when I exercise and generally move around. I also use an ice pack (especially helps when the pain is on the face). Advil in addition to the gabapentin and duloxetine helps but I try not to take it too often. I am now trying Chinese herbal medicine. At this point I have nothing to lose. Will report back if it helps. We should all help each other out and share anything that works. Hang in there.