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Prognosis for Metastasized NET

Neuroendocrine Tumors (NETs) | Last Active: Mar 20 11:16am | Replies (63)

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@margaret12

I’m very sorry to hear but glad the surgeon says are options. If You don’t mind sharing which scan was completed and given the small size of tumor, some also felt cysts, is there confirmed cancer in liver.
I have some liver findings too, yet no one confirms the diagnosis.
Thank you

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Replies to "I’m very sorry to hear but glad the surgeon says are options. If You don’t mind..."

Hi Margaret, every year my husband has a Dototate (sp?) PET scan. It is a more advanced PET scan that picks up smaller tumors and is great for NETs. My husband has 3 tumors in his liver and yes, they are cancerous. Bc there was change in this last scan and the tumors have grown, not a lot but enough and it's spread that's why the surgeon is recommending the surgery. If you haven't found a PET scan facility that has the Dototate PET scan I recommend you find one. And Oncologist who specializes in NETs would be aware of that scan. Make sure your Oncologist does specialize in NETS Not every oncologist knows how to treat them. Do research too. If you don't mind me asking, where did yours originate from? Or is everthing just in your liver? If just in your liver I would go to a liver specialist. We are be fortunate to have a great team. The surgeon and his partner are both Oncology surgeons who specializes in NETS. A CT scan with contrast will also show tumors but not always the small tumors that NETS produce. But at least it'll see a tumor. Then a biopsy would be necessary. Keep me posted. And I hope you get some answers. Hugs...I know it's scary. Right there with you.