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Does Small Fiber Neuropathy always start in the feet?

Neuropathy | Last Active: Oct 19, 2022 | Replies (10)

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@raepent1

My “progression” is almost exactly like yours - this odd tingling on my left side only and mostly hands/arms/shoulders/upper body so evenings in the FL humidity where every single dust particle or invisible flying insect is felt causing miserable evenings to enjoy on the porch. I’m not sure if it’s possible SFN or the AI disorders, but over the past year, I feel so uncoordinated as though my finger tips have lost all ability to grab small objects on the counter, button without frustration and removing the feminine liner from their packaging, I’m using my whole fingers to do this and not just fingertips. I do feel them in my legs, but only occasionally. I have noticed though when I first wake, my feet and toes have the “asleep” feeling for a long time before I feel like I can put them on the ground.

I’ve been on Pregabalin for months, upped the dose a couple of times, but doesn’t seem to make any difference. If you find surefire ways to make these “shocks” go away (without complete hippie/holistic/ultra clean diet change), I’m all ears! Best wishes to you in your quest for relief!

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Replies to "My “progression” is almost exactly like yours - this odd tingling on my left side only..."

Left side of *face…didn’t finish the thought apparently 😉

Thanks. For me, when I woke up in the morning, my fingers and toes were so stiff I had to pry them open. I even went to see a rheumatologist who took X-rays. He said I did not have arthritis. I think it is due to SFN. I added duloxetine (Cymbalta) to the gabapentin, and it made a huge difference in pain level and my fingers and toes. I was hesitant to add an anti-depressant but it significantly lowered the pain level for me including the stiffness in my fingers and toes and the electric shocks.