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DiscussionDoes Small Fiber Neuropathy always start in the feet?
Neuropathy | Last Active: Oct 19, 2022 | Replies (10)Comment receiving replies
Replies to "Mine started out only one side of my face. Then my arm, and lastly my my..."
My “progression” is almost exactly like yours - this odd tingling on my left side only and mostly hands/arms/shoulders/upper body so evenings in the FL humidity where every single dust particle or invisible flying insect is felt causing miserable evenings to enjoy on the porch. I’m not sure if it’s possible SFN or the AI disorders, but over the past year, I feel so uncoordinated as though my finger tips have lost all ability to grab small objects on the counter, button without frustration and removing the feminine liner from their packaging, I’m using my whole fingers to do this and not just fingertips. I do feel them in my legs, but only occasionally. I have noticed though when I first wake, my feet and toes have the “asleep” feeling for a long time before I feel like I can put them on the ground.
I’ve been on Pregabalin for months, upped the dose a couple of times, but doesn’t seem to make any difference. If you find surefire ways to make these “shocks” go away (without complete hippie/holistic/ultra clean diet change), I’m all ears! Best wishes to you in your quest for relief!