Well I’m pretty familiar as I’ve had it now for about eight years. I have been told it may go away one day but have my doubts about that. My muscular neurologist recently left the practice so I am in search of a new doctor here in New Jersey. I’m hoping that someone has some new ideas or therapy. I’ve been using limited exercise, stretching, massage and taking baclofen. The bad thigh cramping has diminished but the pain now in my calves and feet is constant and sometimes almost unbearable. I sleep very little. I have high blood pressure which precludesme from taking most pain medications. I also have Crohn’s disease, in my mind I think they’re linked both being auto immune. I read that low dose naltrexone is being used for some AI diseases. Looking for anyone who has positive therapy ideas.

I have never heard of it before, however I do get servere cramping in my thighs and sometimes they feel so tight, I have to feel them to see if they really are...(and they are not) They are not fun, however I would also like to know more about cramp fasciculation syndrome,